NRAS Logo
Logged in as: pedro-pmc Search | Moderate | Active Topics | My Profile | Members | Logout

New Topic Post Reply
Help & advice needed asap regarding confidentiality at work! Options
donnalouisec
#1 Posted : Tuesday, August 28, 2012 7:27:37 PM Quote
Rank: Advanced Member

Groups: Registered

Joined: 4/4/2012
Posts: 30
Location: West Yorkshire
Hi

I could really do with some advice asap if anyone could accomodate I would be extremely grateful.

I wont go into all the ins and outs or we will be here all night, but the basics are I was diagnosed with severe RA in Novembe 2011. I have recently had no choice but to return to work or loose my job under the capbaility rule, however during my time off sick I have always requested that my manager does not disclose my condition to anyone except his manager on a strictly need to know basis.

It has since come to light that not only my managers manager knows about my but also a number of other managers along with numerous people in the office. My first day back at work(last Tuesday) was really frightening and extremely daunting to say the least even more so still being in extreme pain and not having my disease under control. I have gone back to work even though my GP & consultant both advised me not to. I really didn't want to loose my job, im only 39 and everybody keeps telling me things will get better.....

Anyway as I am office based I have to have a dse work assessment done to find out what equipement would be necessary for me to complete my work. There is a girl in the office who has only just trained ( 6 hours of training) and they asked if I would mind if she made the assessment. The girl in question is also the office gossip bearing im mind my request that nobody be told until i am ready to tell people, so I voiced my concerns and stated that under no circumstances would I feel comfortable with her completing my assessment. My manager intially agreed and said he would request somebody else, he also said that as we would be requesting somebody else to do the assessment we should elaborate on the form. Well you can imagine my dismay to get to work this morning and be told that I have no option the girl in question would be completing the dse assessment and that the forms had already been sent. I am absolutely devastated. I feel totaly let down my managment to the point that I have lost all confidence in them. how can I possibly approach them now with any personal issues??? I have not even told my own team of my condition and now to find out that other teams know and shouldn't I feel like the office freak and its only day 4 I really don't want to go back tomorrow,....

I have a meeting with my untion rep tomorrrow morning but don't hold out much hope. Has anybody else experienced anything similar??

Totaly devasted

Donna xThumbDown
Jane.
#2 Posted : Tuesday, August 28, 2012 9:22:34 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 5/2/2012
Posts: 670
Location: where the sun always shines :o
Sad Hi Donna

So sorry to read about you.
I would of thought no, certain people (manager, hour, occ health) should know about you and your condition.
I have had similar, where I have told another superviser when my other one retired. My occ health know, and a manager knows.
I've seen occ health when I was diagnosed and was referred to the occ doctor. He saw me at the beginning 2007 when I was diagnosed, and really empathetic with it.

Until recently, I haven't been off sick with anything ra.....made effort knowing one day I would be off for sometime ra related. I've had bunion & hammer toes op, have been off with that and a flare up. So I'm using 2 walking sticks and shuffling along at snails pace.

I asked my superviser if someone else could do my dse because the office gossip would of facebooked to anyone and everyone.
Only a few people know - I'm a very private person off nras forum.
This other person that did my dse is lovely and respects my wishes for noone to know, she's visited me at home and taken me out for a coffee while I've been off.
My superviser she doesn't "get it, the ra thing" instead done an organisation referral to occ health when I'm fit to return. I have emailed my next line manager and another superviser to keep them in the loop whilst the original superviser is away (so there is evidence I've made contact).

From my external dse assessment, I got a mouse - kensington product that you role the ball of the mouse with your whole palm of your hand, arrived quickly. Waiting for a gel mouse mat and gel wrist rest.
I have a work chair that took a while to be made, which arrived while I was off - can't use it because someone will have to come out and tweak the adjustments.

When I feel well enough, I'm dreading returning, I get a return to work interview - I can handle that side of it, I have put enteries in my diary of sicknotes running out, hospital consultants appointments. But my superviser not having an understanding of ra, she mentioned I should tell my colleagues - I said no, my business.

My understanding, if doctors/consultants said to you that you are not well enough to be at work, then you are covered medically. You are covered under the disability act.

Have you read the "employment" forum. There is a gentleman that is very clued up on disability/work place matters for guidence and advice. Also, the nras helpline - phone number on web page.
You shouldn't have to be having this extra pressure and stress, not on top of ra....none of us should.

Please take care of u, I'm sure with the vast experience on nras forum someone can help!
Jane
Xxx
Jane.
#3 Posted : Tuesday, August 28, 2012 9:25:26 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 5/2/2012
Posts: 670
Location: where the sun always shines :o
Scared Huh mistake - first line hour should mean human resources! Long day
Jane
Dorothy-W
#4 Posted : Wednesday, August 29, 2012 10:23:36 AM Quote
Rank: Advanced Member


Groups: Registered

Joined: 9/13/2010
Posts: 786
Location: east anglia
donna you are not in a good place,i ended up leaving my job as my original boss (chef/managar)was really so helpfull and trusted only him and 2 i worked close with knew,O/T helped him as well as they are based in the factory, i got the work books from nras and gave him the employer one to read he was so good put lots in place for me no questions asked but we were taken over,he left,new manager and company, area manager decided i didnt need my aids and took them away,they also told everyone i had RA so you can imagine how i felt,i was on 3 day roll on shifts and the other girl on my job was 20+ years younger than me so she didnt need help but she was lazy and i always had to finish her work before i could do mine,i ended up on the sick and eventually left,it is a very grey area in the work force,alot of people look but dont really see your problems,be carefull,all the best,dorothy
sylviax
#5 Posted : Wednesday, August 29, 2012 6:03:21 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 5/28/2012
Posts: 665
Location: Newton Abbot
Hi Donna - you are NOT an office freak.

None of us are freaks.

We have a nasty disease that is currently incurable - it is not our fault! The worst aspects can be managed by medications and taking care of our bodies by adapting our lifestyles - we should not feel ashamed or embarrassed by other people's ignorance.

The requirements needed to allow us to be useful and productive in work are not so very different from your average person - after all chairs are provided in every office and there is a moral (and legal) obligation for those chairs to be "fit for purpose"; equally we wouldn't expect an "able-bodied" person to use a knife to open a can even though they physically could, of course we assume that can-openers will be provided if needed - what is different about a disabled person's needs? Just because we can struggle to do things why should we, when a simple adaptation can make it quicker and safer and in our case less painful!!!
Be kinder than is necessary because everyone you meet is fighting some kind of battle
Maria_R
#6 Posted : Wednesday, August 29, 2012 6:38:38 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/4/2009
Posts: 856
Hi Donna

I'm sorry you're having to go through all this,on top of having RA. Sadly it seems to be getting all too common for many of us and the way we are treated makes me furious.


My RA isn't too bad much of the time but I've had a lot of trouble at work too. I have a manipulative unpleasant Head who thrives on encouraging conflict between staff even going as far as getting them to 'tell tales'. It started when my being diagnosed coincided with a part time dept colleague resigning. As the Head already had a reputation for getting rid of older staff I was on my guard and sure enough, as I predicted he tried to get me to go part time so he could bring in a new head of dept. I didn't so the next thing was to get me on capability. He set me lots of targets which I managed to achieve although it was hard I wasn't going to crumble as he expected. That was fine for a while- I decided to go down to 4 days a week and he said that my absence wasn't a noticeable problem. A year later I decided to give up the Head of dept post as I'd had enough of trying to cope with a most uncooperative dept member who would not accept my leadership, but told him it was for the sake of my health He got what he wanted- for a while left me alone but this year he tried to take disciplinary action due to my frequent absence ( not a problem before).Fortunately his log of absences was inaccurate ! With the help of my union rep I put up a fight- pointing out that I'd lost both of my parents within the space of 18 months and that this year there had been several staff off with chest infections and other illnesses so I felt I was being picked on. He backed down and said he was not going to proceed with further action.

Sorry to bore you with all the detail! It has been very stressful having to fight and has certainly caused several flares but I'm a fighter by nature. Please make sure you keep written records of everything, copies of all e mails, ask for relevant documents such as the company health and attendance policy and do your homework thoroughly ( sorry- the teacher in me!) . Sadly I've learned that employers are unforgiving when it comes to illness and I've learned not to trust anyone, a sad state of affairs. A former colleague suggested looking at workplace bullying , ACAS, Equality Act etc websites.

I'm quite a bit older than you and only a few years off retirement but it makes me so angry to be treated like this, particularly when I've been hardworking and committed all these years and still have a lot to offer. I appreciate that staff absence can be a problem but we didn't ask to get this awful disease and some support and compassion would be great.

I hope that you can get through this- keep us informed of how it goes.

Take care -and look after yourself.

Sending you big hugs

Maria





donnalouisec
#7 Posted : Sunday, September 02, 2012 5:22:17 PM Quote
Rank: Advanced Member

Groups: Registered

Joined: 4/4/2012
Posts: 30
Location: West Yorkshire
Thanks for all of your support.

Sylvia, I didn't mean to imply that we are all freaks as such and I hope you didn't take it as offensive. I simply meant that with I felt like everybody was pointing and staring and talking behind my back. I am wearing wrists splints, and walking with an extremely bad limp as my left knee is severely swollen. I sometimes use a crutch, but this depends on my wrist. I can barely walk the 50 yards to my desk and have to stop as the pain is so bad.

Anyway I had a meeting with the union rep and he was absolutely disgusted with the way I have been treated. So much so that he has suggested I put in a grievance on the grounds of harassment. He has also suggested that I apply for disability adjustment leave as the reasonable adjustments I requested for my return have not been put in place.

I haven't slept or eaten for days now, the sheer stress of what is happening is a complete nightmare I am so restless and can't stop crying. To make matters worse I have been taken off my biological drug humira as it didn't seem to be working and am currently doing a 6 week cleanse so I can start a new treatment. There is no way I can wait that long so intend t ring the rheumy team in the morning and see if we can move it forward. I am at an all time low at the minute and don't know which way to turn. If I do put in a grievance they will make my life hell, thats for sure. If I go back to my gp I know he will put me on the sick again and then I will loose my job. I can't believe this is happening.

Sorry for the rant

Desperate

Donna
Jane.
#8 Posted : Monday, September 03, 2012 5:09:32 AM Quote
Rank: Advanced Member


Groups: Registered

Joined: 5/2/2012
Posts: 670
Location: where the sun always shines :o
Smile BlinkHi Donna

Ra is frustrating, I laugh, cry, ask myself why?!
Do ring the hospital - peace of mind for you and shows the employer that you are reactive to your condition and taking responsibility.

Its an awful situation with work it ur unison rep has given advice to you - I would take it because you are covered under disability law and the rep knows what they are talking about.

If say in a negative way you loose your job, then you could take it to an employment tribun - BUT gather evidence! What I mean is take notes of the incidents/who you have seen/comments/witnesses/record days and times. Has the unison rep put their comments in writing?

If the doctor puts you off sick - then listen to what they are saying because they are there to help! I know its easier said than done but you need to have time out and look after you!

Please Donna eat & get rest because ra doesn't do stress!
Give nras helpline a call for advice, peace of mind.

I'm embarassed because I've been off sick since June following foot op and a flare up, I'm having pressure to return to work but I'm stiff, shuffling like an oap, can't walk far and have a stick.
I don't want people to see me like this....................I went into work Friday to hand in sick certificate into reception (didn't
go into office) and my superviser doesn't get ra.

What I'm trying to say Donna, is you are not alone!
Look after U and think of yourself.

Nras does a booklet for employeers about ra and giving them pointers if it helps.

Hopefully u don't see me as a nag bag, my intentions are caring and kind!

All the best to you.
Jane
Xxx
jenni_b
#9 Posted : Sunday, September 09, 2012 12:51:20 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 2,237
Location: nr Southampton
Hi

I'm jenni, I've got severe ra and I'm 36 now.

I got it when I was 21 and managed to work for 9 yrs.
When I was 30 I took ill health retirement.

I was a primary school teacher and simply loved my job but it became impossible.

For me, I think you need to self limit what's happening as much as you can. Go to the rheumatology dept and ask them to refer to bath rheumatic diseases hospital and have some inpatient treatment there. I think st Thomas and guys offer similar under dr Gabriel. I saw dr bhalla in bath, there's a dr Ellie there who's also lovely- look on their website.

Go for the treatment and keep on with the meds and in say 6 months you aren't well still, then go for ill health retirement.

I don't think it's the same, with respect, as those with controlled moderate disease.
Severe ra is a different kettle of fish and you are going to have to do life differently.
I'm so sorry for your loss
But theres lots of life to be had all the same.


I don't come on here much as its pretty quiet these days but on Facebook and you're welcome to find me. I'm jenni b-l on there. I'm a friend of lyn etc.

Jenni xx
how to be a velvet bulldoser
sylviax
#10 Posted : Monday, September 10, 2012 8:58:10 AM Quote
Rank: Advanced Member


Groups: Registered

Joined: 5/28/2012
Posts: 665
Location: Newton Abbot
Hi Donna - hope you've managed to sleep better and are eating. I've just reread my last post and realise it was a bit gruff! I think I was just so angry for you and the way you've been treated, but it came across rather negative - sorry.

I'll echo what Jane and Jenni are saying - you need to take rest and give your meds time to do their job and allow your RA to settle down. Stress will make the pain a whole lot worse. You're being given good advice from your GP, consultant and union rep.

I do hope things look brighter soon and remember to eat well - lots of fruit and veg are good fuel for your body to feel better.

Best wishes - Sylvia xx
Be kinder than is necessary because everyone you meet is fighting some kind of battle
Users browsing this topic
New Topic Post Reply
Forum Jump  
You can post new topics in this forum.
You can reply to topics in this forum.
You cannot delete your posts in this forum.
You can edit your posts in this forum.
You cannot create polls in this forum.
You cannot vote in polls in this forum.

SoClean Theme By Jaben Cargman (Tiny Gecko)
Powered by YAF 1.9.3 | YAF © 2003-2009, Yet Another Forum.NET
This page was generated in 0.196 seconds.